Tuesday, May 8, 2012

Glow

I have a secret,  

When I'm happy I feel luminescent. Radiant, and Bright. 
I am so full of light that it threatens to explode out of me,
 in sound, in movement, in dance, in style, in color, in creative expression.
I feel stunted, dulled, and faded 
when I loose my light..I feel lost. 

Its kinda like I lost a bit of myself, disguised as my best childhood friend. I knew she was standing there just a second ago. but now I stand here with my hand outstretched, holding nothing. 

she's gone

I catch glimpses of her now and then..
out of the corner of raindrops
in the sides of windows
and on the edge of sound.

She's there, somewhere, just out of sight. 

waiting for me. 

to glow. 

I used to flash my lights more often then I do now. I used to luminesce and burn, and radiate from my very core, my passions, my interests, my loves. I dont have "likes/dislikes" I only understand "love and hate" and when I "love" something or someone, I do so with my whole being, It's a compulsion, I HAVE TO ..I have to express Love and Joy, and Light..otherwise I feel like 1/2 a person. When I spend too much time, not nurturing my creative side, not expressing myself. (which is complicated enough as it is), and when I am being flooded by negative emotions, thoughts and vibrations, I can feel that Glow dimming...Like a dying glowstick, only good for another hour or two, before being thrown away. 

Ive been trying to focus on the power of vunrability. (the blog is part of that). Where I am trying to be as honest to myself, about myself as possible. (This is very hard to do). I have been focusing on all the little positive things, and little miracles that happen throughout the day, instead of the setbacks. 

I LOVE COFFEE, I Love music, I love fun colors, Happy people, and Awesome Games. I love the laughter of my children, I love the tiny little blue flowers in the backyard (I think they are forget me nots, but I'm not sure, all I know is they look like you could pick a bunch for a vase in a dollhouse and they would be the perfect size) . I love the sunlight through the trees, I love our neighborhood tabby cat...I love my internet friends..I love rainstorms...

but none of that..was enough..to beat out the negativity this week..
My insecuritities know no bounds..but I guess this is all part of the process of being vulnerable. 

I am laid bare to the emotions of the world. I was born this way. Any effort to block it out has met with disaster and failure..so I am doing the only thing that I have never done before...

Not fight it. I'm going to let it in. Let it change me..and try not to fight too much when it does. 



wub wub wub...



There are some cultures that claim the Universe was sang into being....
I believe it was this sound..
I have been madly inlove with the "wub wub wub" (warble bass) sound since I first heard it in 1999 .
I'll never forget it. My whole world just stopped.  All my thoughts Absorbed in that sound..


 I used to be quite the "Junglette" I spent most of my young years following the local Drum-n-Bass DJs around the city. which eventually led to a lifelong obsession with "da beatz".

This yoga-pants wearing mom, used to don the phat pants, camo-tank and visor, and go out late and listen to what kids called "jungle, or drum n bass" back in the forgotten late 00s.  (and boy could I rock a beat, pink reflectors shining, ripping up the dancefloor in circles, triangles, and other odd dance-like motions).

the "beat" followed me through the years, sometime I would think I heard it..and then loose the memory almost instantly, Other days, I would long for that sound so badly, I would dust off my old Dieselboy CD (that's compact disc for you yung-uns) and drown in the sound and the nostalgia for hours..sometimes days at a time.

I miss the music, I miss the beats, I had almost forgotten that time in my life. I can't believe I almost forgot what It felt like to be next to a giant subwoofer while your favorite sounds are being shot (cannon style) at you, one note, one beat, one drop at a time, All fired by your favorite DJ.....magical.

I would listen to 4-6 hours of sets, from Beatz to Breaks, to UK garage, to Hard techcno, to Jungle...all the while just waiting for that..little..and amazing...Whubwhubwhub sound to sneek in the track...
And then My fave Jungle DJ would grab the tables..and my world would just explode into drums and  WHUBWHUBWHUBWHUB...

of course..that was a long time ago....I had left it all behind me...and then..

I discovered Dubstep....


Its been over a decade since I herd my beloved "whub whub whub" sound. Imagine my surprise when It started popping up Everywhere! And I mean Everywhere.. somehow almost overnight the "whub" took over mainstream music media...from pop tunes on the radio, to TV adverts..It's everywhere.
Internet Explorer: A More Beautiful Web

I wub Dubstep!

(do not click link below unless you can handle deep epic awesome)

Wednesday, May 2, 2012

The Epidemic of Normal

you may have noticed that I am a rather loud Advocate of The disability Acceptance movement.  
I believe strongly in the idea that people are people, not a collection of illnesses,traits, or behaviors. I do not believe in "disability, disorder, or the terms we bandy about to describe differences in experience.  

my youngest child has hemiparigic CP, He has a weakness on one side of his body due to a complication from an operation he had to fix a problem soon after his birth. He has a "disability" go ahead, and tell him that. He'll just look at you dumbfounded. The very Idea that you "NEED" both hands for things escapes him. He can put on his clothes with one hand, he eats and drinks with one hand, he plays with one hand, and draws, and catches balls, and does everything a normal 2 year old does...he just does it differently.

I wonder sometimes if he thinks that we are "less capable people" because we seem to need both hands to do things he can do with just one. different perspectives are good. I understand that to my son, I may look weak, and incapable, and I understand that to the rest of the "twohanders" he may look weak and incapable. he's not. he just see's a different world,

 One of my Favorite Quotes by Albert Einstien states: "Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid.”

When we put labels on people that marginalize them, instead of build them up, we loose so much. We loose the understanding that a new perspective gives us, we loose our chance to experience something profound, and we loose our ability to grow as a species.  

"Any society, any nation, is judged on the basis of how it treats its weakest members -- the last, the least, the littlest." ~Cardinal Roger Mahony

  We have a problem here. We are treating people as "less","diseased",and "broken" this is a HUGE problem for everyone. In our desire to "help the weak" we have given ourselves the godly power to declare who is weak. and what is worse, is this is all carried out in the name of a dangerous ideal of "Normal"
Normal is an illusion. Normal is a statistical result, It's not real. There are no guidelines for "Normal" there are no diagnostic tests for "Normal" there is no medication, therapy, or product that can make someone " Normal" What we do instead, is hang onto an Ideal, and then try to make everyone else match it. We don't like how they are different from us, so we call them "Abnormal, diseased,sick,disabled,exc.." We try to Fix, Cure, Save, "Help", Include, and otherwise Find a place to put these "Abnormals" so we can feel non threatened.

 Truth is, Difference is threatening, We spend our lives as humans doing the same thing, the same way, and expecting the same result. Everyone does this. Everyone has their favorite chair, favorite food, and favorite route to work. We are creatures of habit. now what happens when you change it? when that person who has always done something the same way..see someone else doing it differently.....

 There are two ways to handle this problem. You can learn another way, a different way, or you can just dismiss it as "wrong" and go back to doing what you have always done. Most people dismiss it, or declare it as "wrong" or "sick", some people even try to destroy it because it makes them so uncomfortable. Yet others enjoy learning a new way, they gravitate towards a new perspective, they can see a different world. They have Empathy. We need to do more to encourage the 2nd response out of humanity. The part of humanity that goes " oh, I never thought of it like that before" and learns a New way.

 I have a set of traits that make me who I am, And so do you. They do not make me "sick" "broken" "abnormal" They make me Different. I'm Different, just like you are Different. That is what unites us. That is what "defines us" We are All the same. We are all human, we all have our talents and our struggles, We have different ideas, opinions, beliefs, and cultures, but we are all on this planet together, so we need to learn to Accept Differences, not Erase, hide, or Cure them. If a person is sick, It is causing them a problem. If A person is Struggling It's causing them a problem. But If someone sees the world differently, does things differently, looks different, sounds different, That is not their problem. Their problems are their problems, just like your problems are your problems.

 I am not of the mind that I need to MAKE my child a "twohander" I will do everything that I can to help him understand what it's like to be a "twohander" and maybe, maybe, he may try it out for a while. But he will always see the "twohander" world as a one handed person, even if he gains full mobility of his hand back. It's just who he is.

 Dont expect people who are "different" to fit into your idea of "normal" They cant, they can only "fit" in theirs.

 The fact that we all are different makes us all the same, that is our common ground.

We need Acceptance, We need understanding, and most of all We need a new way of looking at the world and the people in it.

I will not make my son behave like a "twohander" he isnt one. I can show him the "twohander" world, and so If he ever choses to do things the "towhander" way, he can. But I want him to be able to show others "his way" the "onehander" way. I want people to accept and honor his talents, and help him through his struggles...

Not because he has a "disability" but because he is a Human Being.


Sunday, April 29, 2012

To “I Wish I Didn’t Have Aspergers”: An #AutismPositivity2012 Flash Blog Event








Dear "I wish I didn't have Aspergers",



 I'm sorry that people have treated you badly, or inferior, or aggressively, because they thought you were "different" and told you so. I'm sorry that you have been ignored, mistreated, misunderstood, and taken advantage of. I'm sorry that the people who you wanted to feel close to, rejected you, made fun of you, and belittled you because of who you are.

but...Please dont blame yourself for the negative actions of others. It's not your fault. It's not your "Label". Its the fault of other people who could not be bothered to take the time to get to know what an Amazingly AWESOME person you really are. And you are Awesome. because just by hitting the internet and typing out a term in a search bar like "I wish I didint have Aspergers" shows a desire to connect, to be understood, to understand yourself, and to find a community that understands you.

Bravo! that takes alot of courage!

And we are here, EVERYWHERE, not just the ASD/Aspie community, but the LGBT, the GEEK, the NERD, the DORK, the Cosplayers, the Furries, the Fairys, the pagans, the christians, the blacks, the whites, and even the so called "normals"  Everyone is just trying to find a place where they "fit". Everyone is looking for that same connection, because at one time in our lives, we have all be belittled, rejected, ignored, and made fun of for who we are, and what we believe.

YAY internet! Finally a place where everyone can go. to find a place to "fit" within a community.

and don't get me wrong, finding local folks who are supportive of you is important, but dont ignore the support that you already have because it's not the type of support that you want.

 YOU ARE NOT ALONE. YOU NEVER WERE. THERE ARE MILLIONS OF PEOPLE OUT THERE WHO ARE NOT JERKS, WHO ARE CAPABLE OF UNCONDITIONAL LOVE, AND WHO WILL LOVE YOU AND ACCEPT YOU FOR WHO YOU ARE, NOT WHAT YOU ARE "CALLED". YOUR BRAIN IS BEAUTIFUL, YOU ARE BEAUTIFUL, AND THERE ARE MILLIONS OF PEOPLE OUT THERE WHO ARE WAITING TO SEE WHAT YOU CAN DO....

and the best part is..all you have to do. Is be your self.


There are lots of crappy people out there who will only be able to focus on what they perceive you "cant" do. But there are even more out there who will see you for what you "can" do, and who you "are" instead of what you "will be".

You are Amazing right now. You are Awesome right now. You are full of love and light and character, and ideas, and talents. Right Now! don't give up because someone told you "your not good enough/smart-enough/pretty-enough/well-spoken-enough/ YOU ARE ENOUGH, YOU ARE AWESOME RIGHT NOW.

but if you cant see that, If you have to look at yourself through the eyes of "others" Look here, Look at the Awesome community who loves and supports you...Right now

and All you did was type "I wish I didint have Aspergers" in a google search.


see, I told you that you were amazing...




Saturday, April 28, 2012

11:54 PM

I am writing this from the 2nd story of our local Hospital. I am staying here for the time being with Littlebear who has contracted some sort of strange prehistoric cold, and Is being monitored for progress over night.

I am here alone with LB, while DH is with JP at home. It's ok. His Aunt works on our floor tonight, and she was Awesome enough to rock him to sleep when I couldnt get him to sleep for me this evening. (not that I blame him, you should see the "baby cage" they expect him to sleep in.) If I had a werewolf baby, this thing may had made sense, but for an ordinary kid, Steal bars just seem a bit over-kill.

He took my bed instead.

I'm in a rocking chair. drinking weakly brewed coffee, and trying to type as silently as I possibly can, while I wait for a friend to drop off some cash from DH because he is stuck at the house with JP while I am stuck here with LB. (yea, I know should have thought this out better).

there wasnt alot of time for preparations. LB had his early intervention team meeting just like every week. and then soon after it was over, LB started coughing worse, and made these weird heaving breathing noises. Buy the time I had him wrapped up and ready to go, he was just focused on breathing..given the mucus..I can understand why he was having such a time with it. He gets colds from time to time, and usually they are not a big deal, I just bundle him up, and take him outside for a while. DH was on a confrense call for work, so Instead of interrupting him with "hey your baby is dying again" I just packed him into the stroller and headed towards the hospital. He was breathing well, just not having a happy time of things. (If it had been worse, I would have called a bus). I figured that he would clear up before we got there, but he decided to stay.

I didint think it was any big deal. Just an inhaler, an antibiotic, and possibly a shot o steroid like last time.

and yea, they did that. and a 2 hour antibiotic drip after they had put in an IV. And then told us that If he didint clear by 5 o clock, that we would have to stay over night. 

He was admitted to the ER at 11:30 Am. Its now Midnight, and we are still here. Thankfully he is doing better, (and sleeping well for the time being). 
I'm trying to enjoy the flat coffee, and ignore the blinking lights on the monitor that publish his heart rate and Oxygen stats. I dont know how I'm going to sleep. (he took the bed, so I guess I get..the cage?).

(Edit :Update) We slept through the rest of the night, and although it was interrupted sleep (nurses checking in every 1/2 hour) there were no further problems, and we were discharged a little after noon the next day. they sent us home with a nebulizer, a pack of albuterol, an inhaled steroid, and some really scary "cough medicine" that thankfully he doesnt need. He is sleeping now and breathing well. so even though It was a most uncomfortable situation we are all doing much better.

Now I'm going to sleep, in my own bed, after drinking my own brand of coffe, and possibly eating a ton of my own ice cream.

Wednesday, April 25, 2012

Aspie at the Dentist (part 1)

I hate going to the Dentist. I have the worse Denist fear due to having a very aggressive one as a child. I have avoided going for so long, that I need to have alot of work done. I have never had a positive dental experience before. Ive been yelled at, laughed at, told "it doesn't hurt that bad" and so on..

I had a Dental appointment today.

As usual I had a panic attack before going. I'm used to that. I always have a "sudden attack of primordial fear" before I have to go see a stranger to poke at something that hurts with a pick. I'm pretty sure that's a normal reaction. (kinda like when you try to give a cat a bath).

I have been to this office before, so I knew what to expect. I had severe sensitivity in a few of my teeth that has been giving me pain for over a week, so I knew I needed to go.

I still couldn't shake the fear. I couldn't control it either. I should just get this out in the open. I'm a crier. I can't help it. I just cry over the dumbest things sometimes. I'm a very sensitive person. And When I'm scared, I cry.

Usually I have enough time before my appointment to get over the crying, and be almost through with the panic before I get there. This morning was the morning my Toddler refused to wear pants. I tried everything, and eventually we compromised by letting him wear his pajamas.

I was 10 mins late (I HATE BEING LATE)

and I was still crying. I didint feel fear, I was just crying. It was a nervous response. I couldn't stop it. I sat in the car for a few minutes (15 mins late now) to try to calm myself, and nothing was working.

so I went to my dentist appointment today. And cried the whole way through it. I cried at the reception desk, I cried waiting in the lobby, I cried during the cleaning, the X ray, and the checkout. I was still crying when DH came to pick me up. It was so strange. I'm a crier, but never like that. I NEVER cry in public If I can help it.

Here is the Awesome part though.. The assistants went out of their way to make sure that I was ok, and comfortable. they stayed with me in the room while I was waiting for the dentist, they talked to me about my Xrays, and told me before they touched my mouth in any way what they were doing, they brought me the national geographic magazine that I was trying to read in the lobby and wiped my tears from my face gently with gauze while the dentist worked on "checking my tooth sensitivity".

It was the most heartfelt, kind, gentle, and best treatment I have ever gotten at a dentists office EVER.

It's so nice to know that even In my worst state, they are still kind people in the world. I think I can make it through the sensory overload, and pain, much better now that I know that there are others who understand the stress I am going through.

I still hate going to the dentist. but I left absolutely glowing (still crying, but this time, It was more tears of joy and disbelief then fear). I felt like I had climbed a mountain.

All those years I "toughed it out" in public, All those years "faking it" and trying to pass off as "normal" and "unaffected" All those years I was afraid of what people would do if they ever "saw" the real me.

Here I was, Embarrassed, Scared, in pain...

and all I saw was Love.

Monday, April 23, 2012

blogging, blogging, blogging...

    Oh, wow! It's been a full 24 hours, and I still really like this blog. I can't believe it! I'm happy with the layout (for now) I'm happy with the interface, and I even have things to blog about that are showing up in my brain in an organized manor. (Halijula!)- I have no idea how to spell that word, my blogger spell checker thinks its (halibut). lol. (looked up how to spell halijula Its actually spelled. hallelujah so I don't know why blogger Spell check decided that I was trying to write about fish instead, but I find it pretty humorous. I think I'll just go around saying HALIBUT! from now on. 

back to the blog.

    It's rare for me to stick with something, and even like the idea after the majority of the thought has been expressed. I thought that I was "over" blogging. I thought that I didnt have anything to say and "no one would want to read it". Truth is, I was sabotaging my previous blogs, because I didint want to read it.
    I would read all these wonderful amazing blogs, written by wonderful amazing people, about their wonderful and amazing lives, wishing I could be that happy, that I could write that well, that I could express myself without stumbling all over my own thoughts. (which even now are bringing me back to "halibut")

    but the more time I spend reading blogs, and posts, and articles, the more I think. "My voice is missing".
I do have things to say. I have lots of things to say. I discovered that I am also a "needed" part of the conversation. I have a right to speak my mind about things I feel passionate about, just like anyone else.
I have a right to my opinions, thoughts, and beliefs, just like anyone else.

Mostly I discovered that my life Was Amazing, and worth writing about.

I'm Awesome, and I have a ton of experience to share, as a mom, as a woman, and more importantly as a compassionate, understanding, and accepting human being.


I have the same problem with social networks as I do in the real world. They just don't seem to "fit" me. Social networks are Awesome! but each and every one of them has limitations that limit my expression. With Twitter its 140 char. With FB its well..the people on FB. and I have no idea what Google+ is anymore.

I like blogs. I can say what I want. Type as long as I want. I wont get flamed for having an unpopular opinion, because, hey, It's my blog. If you don't like it. dont read it.

but I hope you will.

Because I will, And I will read and respond to every comment (assuming they are not hateful) and I will try to answer every question. I hope to always be as honest as possible, and as expressive as possible. If I want others to understand my point of view, you have to understand how I "see" the world, and the only way to do that, Is to be as rawly me as I can (yes, made up words and all).

And hope that you like it.  :)

(and if you want to find me on the other sites, click the links above or google strawberryskycat or skycat on the interwebs and If you still cant find me, drop me an email at awesomesauceadventures @ hotmail . com)